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  • The month of April 2020 is one we will never forget. This has been what our little family has gone through over the past few weeks and it’s been hard to talk about most days 💔 I’ve just wanted to wake up from what felt like a nightmare. London woke up one morning and had developed a rare kidney condition and she started to swell all over body, it started with her eyes and we initially thought she had an allergic reaction - when watching this video you will see some confronting photos of her swollen face. It wasn’t long before she was admitted to hospital and that’s basically where she has stayed. Her kidneys started leaking out all of her protein and weren’t filtering to her blood. She was put on a 3 month treatment plan of steroids to heal the kidneys and go into ‘remission’ with her diagnoses being Nephrotic Syndrome - minimal change (caused by a virus) She didn’t respond to treatment and was classed as steroid resistant. She gained 2kg of fluid in the short space of 1.5weeks She had fluid through her abdomen and developed an infection on one of her kidneys, alongside a UTI. She has had 4 canulas, with over 10 attempts of those canulas. She has had over 10 blood test attempts and countless urine samples. She was so swollen they couldn’t find her veins let alone draw blood. She has had countless infusions into her blood while being monitored hourly. The pain that we have watched her go through is something you’ll never forget as a parent. London was soon transferred to Sydney Children’s Hospital at Westmead where she had a biopsey on her kidneys. Her results showed more than her original diagnoses, and they have started genetic testing on her blood to investigate her condition further. We were told she may take 3 months to show signs of her new medication to be working or not and that treating her condition can be very delicate. She is only 5 days in to her new medication and she is showing remarkable results on her bloods and urine of improvement, with her doctors and specialists hardly believing it. She is at the start of her journey, but baby girl I know the strength that you hold - Because I’ve witnessed it ❤️ @toddiegee

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